Jack

My dad, Jack, started losing weight long before he got really sick and everyone told him that he looked great but we, those closest to him, knew that something wasn’t right.  He had to use the bathroom all the time and continued to eat whatever he wanted for the most part.  He was diabetic.  He had colon cancer twice while I was in high school.  I was certainly affected by it and upset about it, but I never realized then how serious it could be.  I guess it’s pretty age-appropriate to be self-absorbed at that developmental stage in life, but looking back I always think about what a jerk I was.  And I have a.lot.of.guilt about that.

I got my love of music from him.  Any desire to do something sports-related/athletic that I have comes from him.  I look more like him than anyone else in my family.  My  mom and sister could just about be sisters themselves, but I look nothing like either of them.

When you lose someone, you always wonder what if?  I have wondered what if he had died when I was in high school?  Would that have been easier?  Because in high school, you don’t realize what a treasure your parents really are.  They are annoying and pesky and always trying to ruin your good times with their rules and concerns for your well-being.  Because they do know what’s best for you (usually).  But that’s a hard thing to reconcile when you’re 16 and want to do everything that your 18 year old sister wants to do.  Or want to stay out just a little later.  Or want to date that guy that they have serious reservations about (for all the right reasons).   

You don’t know how much it will mean when your dad walks you down the aisle on your wedding day.

You don’t know that one day you will want to ask them questions about things.  You don’t know that one day you will want to spend as much time with them as you can.  You don’t know that one day you will ache to hear him singing the wrong lyrics along with a song on the radio or that you’d give anything to hear that corny joke that always kind of embarrassed you just one more time.  You don’t know how badly it will hurt when they don’t get to meet their grandchildren.

By November 2006, he had lost a whole bunch of weight and was starting to feel pretty bad.  Doctors started running tests and trying to figure out what was going on.  Was it a reaction to the type of insulin he was on?  Was it pancreatitis?  By early December, he was looking frail and was jaundiced.  He itched so he shaved his beard, that I’d never seen him without, and that made him look even more sickly.  His jawbone jutted out.  He looked older.  Weaker. 

He spent most of January 2007 in the hospital.  He was retaining fluid in his abdomen that had to be drained 2 times a week.  By March 2007, the doctors finally had a diagnosis.  Pancreatic Cancer.

I didn’t know anything about Pancreatic Cancer.  I just knew that when my daddy had cancer 10 years earlier, he beat it with a stick and came out smelling like a rose.  So when I got that call, I was initially disappointed but I had no clue what it ultimately meant for my family.  No clue that this beast is incurable 95% of the time.

My dad didn’t talk on the phone.  It was March 23rd, a Friday afternoon around 3 or 4 in the afternoon and I was picking up around the house.  I vividly remember that the lights in the living room were off and it was kind of dark in there when the phone rang.  My dad rarely called, and I knew we were awaiting results so I sat down on the couch and answered the phone. 

Me: “Hello?”
Dad: “Well, I got my diagnosis.”
Me: “And?”
Dad: “It’s Pancreatic Cancer.”
Long pause…
Me: “So, now what?  What are the options?”
Dad: “I’m not doing chemo or radiation again.  There’s no point.”
Me: “What do you mean?  You have to… what’s the alternative?”
Dad: “I’m going to die.  Treatment would only make me sicker and maybe I would live a little longer…”

Then, he said something that I will never forget. 

“…but it’s not like I’m going to be around long enough to see you have kids.”

Another long pause… What did that mean?  If I were pregnant he’d think about it?

My head was spinning.  I was trying to wrap my mind around the words that were echoing in my ears.  It was a surreal moment.  Going to die.  See you have kids.  All of the sudden, I remembered a walk that my dad and I had gone on about a year earlier when he told me that he didn’t think he would live long enough to retire.  That broke my heart because he worked hard his entire life and there were so many things he wanted to spend his golden years doing.  Fishing. Traveling. Building this or that. Watching his grandchildren grow.

I don’t know what I said after that or when I started crying.  I don’t know when I decided that I was packing my bags and going to Tennessee right that minute to see him.  All I know is by the time I called my husband, I was hyperventilating and crying so hard that I could not get the words out.  He left work immediately and I got into the shower because I didn’t know what else to do.

I wanted to wash away what he just told me.  I wanted to wash away the way I acted when I was a teenager.  I wanted to wash away my future without him.  I remember crying until I was too weak to cry anymore and falling down in the bathtub, just letting the hot water pour over my back. 

And I wondered some more.  Is it better when someone dies unexpectedly and you don’t have time to grieve before they are gone?  How do you make the most of your time with someone when you know they are dying?  What’s it going to be like?  Is it going to hurt?  How long will it last?  When? 

Why?

I graduated from college (yes, at age 27) in May and my mom and dad were there. 

It was the last time my dad came to my house.  When he was leaving, he hugged me and told me “I’m proud of you.”  Those four words meant more to me than he could have possibly known.  My dad wasn’t touchy feely or emotional.  A couple weeks later, I had started grad school and I recall sitting in the parking lot talking to him before class.  I asked him if he was scared and he, like always, shrugged it off and said there was nothing to be scared of.  I can’t imagine knowing that I am dying.  I don’t think I would want to know.

After we got off of the phone, I cried.  And cried.  And cried.  Then I turned around and went home instead of going into class. 

Between December of ’06 and July ’07, I made more trips home than I care to count, but I know it amounted to about 20,000 miles that I put on my car.  On July 21st, a Saturday night, my sister called me around midnight and said that something wasn’t right.  I knew that my dad had been eating less and less because he couldn’t hold anything down.  His digestive system was shutting down completely.  He weighed next to nothing.  She said that he had been lying on the couch with his eyes partially open but wasn’t talking.  She said that my mom had tried to get him up to get him to bed and he couldn’t support his own weight.  My brother-in-law had to go back and help her carry him to bed.  I started washing clothes and got a couple of hours of sleep before making my last 350 mile trip to see my dad.  I think I cried the whole way.  We got there around 1 or 2 in the afternoon Sunday and he took his last breath around 4 in the morning on Monday, July 23rd.  Exactly 4 months after he was diagnosed with Pancreatic Cancer.

The week that he died and the funeral and the burial was such a blur but there are specific moments that I recall so easily.  I remember sitting in the house, expecting him to come around the corner.  I heard his laugh and turned to see if he was there.  I remember feeling guilty that we went out to eat without him.  I remember smiling and crying at the most random times during the viewing as friends and family offered their condolences.  I remember being numb at the graveside ceremony.  And crying all the way home. Not wanting to leave my mommy.  Scared that she would die before I got to see her again.  Not wanting to go back to work and face normal people that weren’t in the throes of all this pain. 

I remember my friend Jody telling me “it will get better.  it will be a new normal, but life will be normal again.  everything really is going to be okay.”  Of all the things that people said to me at the funeral, that is what I remembered the most.  And I clung to those words like nothing else.  It’s taken some time, but her words were true.  It’s not okay that my dad’s not here to see Theo.  To play with him.  To teach him things and tell him stories about when I was a little girl.  That breaks my heart when I think about it.

But I’m okay.

I have stories to tell Theo about my dad.  I have pictures to share with him when he is old enough to understand.  I have already started telling him little things about his Gramps.  We keep him alive by talking about him with my sister’s kids. 

Three and a half years have passed and some days it feels like a million.  Other days it feels like just moments.  I wish I could hear his voice again or give him one more hug.  Losing a parent well before you’d expect to is tough.  It happens to so many people but it is such an individual journey.  I wouldn’t expect to understand how anyone else in my shoes felt or vice versa.  I’d give anything to spend one more day, take one more walk, watch him play the guitar…take back the mean things I said and the thoughtless things I did that probably broke his heart. 

I can’t do any of those things, so I just have to go on living my life the best way I know how.  And the biggest part of that is being a good mom to my sweet Theodore Jack, hoping to make the same kinds of happy parent-child memories that I have of my dad from my childhood and adulthood.

~C~

never grow up

The other day I said that I thought Theo’s 7th and 8th teeth would be coming in soon.  Am I Sherlock Holmes or what?  They’re here.  He’s been grumpier at night a few nights and I guess I have to attribute it to that, but it’s weird because #5 and #6 were through the gums before we knew what hit us.  Brushing his teeth sure is(n’t) fun.  We just realized that we should be doing that about a month ago and we’re not great at getting it done twice a day every day, but we’re getting better.  He, on the other hand, seems to be getting worse.  He doesn’t love it but he’s kind of funny.  He either tries to lick the toothbrush or bite down on it.  Either way, I never feel very successful afterwards.  Better than nothing I suppose.

I can’t believe how much he has changed in the past month.  He started crawling the first week of December.  Since then, he’s pulling up, cruising, saying “da da” (I’ve even heard a couple “ma ma”s in there too), shaking his head no (and laughing) when we say “no no”…while continuing to do whatever we just told him not to, and occasionally waving. He’s even stood unassisted a couple of times and tried to take steps by himself.  He definitely doesn’t have the balance to be successful yet, but the kid has no fear.  He’s banged his head and his mouth a few times and cried more tears than a mama ever wants to watch.  It’s just part of the learning process and we can try to protect him every time but he’s just so quick and things happen so fast. 

He’s turning into something between a baby and toddler, whatever that might be.  He’s still so cuddly and sweet at times and I keep thinking to myself how much I love this age/stage that he is in.  I’m happy that I’ll have the chance to go through it all again, knowing that I have to savor every second of it because it all passes much too quickly.

I’m only partly ashamed to admit that I (asked for and) received Taylor Swift’s new cd for Christmas.  There’s a song on there called “Never Grow Up” and I know that Taylor Swift does not have any children of her own, so she must have no clue how true the words of that song are for parents. 

Here’s a snippet:

Your little hand’s wrapped around my finger
And it’s so quiet in the world tonight
Your little eyelids flutter ’cause your dreaming
So I tuck you in, turn on your favorite night light

To you, everything’s funny
You got nothing to regret
I’d give you all I have, honey
If you could stay like that

Oh, darling, don’t you ever grow up, don’t you ever grow up
Just stay this little
Oh, darling, don’t you ever grow up, don’t you ever grow up
It could stay this simple

I won’t let nobody hurt you
Won’t let no one break your heart
No, no one will desert you
Just try to never grow up, never grow up

Just typing those words almost makes me cry because I mean every one of them.  I look at my baby’s little innocent face every day and think what it must be like to have no regrets.  To have never hurt someone.  To have never been hurt by someone.  To trust everyone.  To not be jaded.  To not be too overwhelmed with fear or worry or grief or stress to fall asleep at the end of the day.  Innocence is so precious and so quickly lost.  You certainly can’t put a price tag on it.  The thought of Theo getting his heart broken or his feelings hurt by mean kids smashes my heart into tiny bits.  I’m not looking forward to him being big enough to understand cruelty. 

If you’re a mommy, whether you like Taylor Swift or not, you should give that song a listen.  I bet it hits home for you, too. 

~C~
p.s. what do you think of the name Tegan for a boy?

the good, the bad, the big, and the little

My weekend:

Friday I got my biopsy results back…my tumor was indeed benign and pathology was able to confirm that it was a fibroadenoma.  I don’t know yet what that means as far as likelihood of it coming back or not.  I go to the doctor for my post-op follow up today and I’ve got a list of questions.  I didn’t expect the tumor to be cancerous, but without a biopsy, you never know.  It seems like a little piece of good news, but it could have easily been a big piece of bad news.

My friend, who had a biopsy a couple of days before me, wasn’t so lucky.  She has to wait a whoooole weeeeek between finding out that her tumor is cancerous and meeting with the doctor to find out what stage the cancer is in and what her treatment options are.  I texted her Friday to share my good news, hoping she had the same kind to share with me.  I tried to imagine her fear but I can’t begin to.  Breast cancer is a big, bad deal.  I hope the early detection lends itself to a great prognosis. 

Sunday morning, one of my best friends (who happens to be a nurse) was telling me the story of an out of control patient (who happened to be homeless) that literally lunged at her in an attempt to attack her.  She’d declined the assistance of the security guards because she wanted to spare her patient’s feelings when she confronted him about smoking in his hospital room.  While being so brave and compassionate, she put herself at risk.  I think she was truly scared and maybe she will reconsider the next time she puts a patient’s comfort before her own safety…but knowing her, probably not.  It’s one of the things I love about her the most.  That could have turned out really badly for her, and unfortunately it ended badly for her patient.  He signed out of the hospital against medical advice and was discharged to the streets in the freezing cold, with no shirt on his back and nowhere to go. 

While she was recounting everything that had happened, I felt this little baby move around in my belly for the very first time.  I counted four kicks and 2 swirly motions – I know, isn’t that a great description?  Although I was captivated and saddened by her story, I couldn’t help but smile at the little ways my sweet baby was saying “good morning, mommy.”  And that was really good.  It seems like a little thing, but it’s not.  Every day that I feel my baby move is a day that I don’t have to worry if he or she is okay in there.  Losing this baby would be a big, bad thing.  I’m so lucky to have made it this far into my pregnancy and I am trying not to take that for granted.

A few hours later, I learned that another one of my best friends’ grandfather had died.  This is not your average granddaughter-grandfather relationship.  We all expect our loved ones to grow old and pass away and be sad about it.  This friend’s grandparents have shaped her life in so many ways.  They have more or less been her parents.  The passing of this dear man isn’t just bad, it’s devastating.  What a beautiful life he lived though… he was married to his sweetheart for over 60 years.  In this day and age, who can say that?  It would be beyond good to spend that much time with anyone you loved.  They were the picture perfect grandparents, too.  Holding hands and bickering all the while.  And would have done anything in the world for anyone, not just each other.  Good, honest people  You don’t run into that every day.  Now we will see what happens to my friend’s grandmother, who’s Alzheimer’s has been getting worse and worse over recent months. 

So much smiling, so much crying.  Life is an interesting thing, isn’t it?

~C~